Friday, March 27, 2009
Busy days and years ahead is what I see, having triplet boys. So much fun. Chris called us yesterday and we had a short webcam moment. The boys were sitting up playing with their toys. Hayden, pictured with Chris above, is the oldest and he needs a little interaction to keep him happy. Ethan, cute as a bug in his green leg casts, sitting up and cool as a cucumber. Jaxon, he is a little shy. But man o man when he is in his comfort zone, lets out his voice and plays with his toys. Our connection kept freezing so we will try another session this weekend.
It was so fun to see how they are growing.
My oldest grandson, Ty, is visiting for spring break so he got to see the boys too.
So Happy Birthday Chris, have a wonderful day! We wish we were there!
We are having a couple nice bluebird days here in Central Oregon. Ty and Uncle Sean are off to Hoodoo ski resort for some skiing. Should be an awesome day with the clear weather.
I have been reading Psalms 91 and 92 daily. It has been so uplifting with the pressure of this slow economy. Like everyone we have been challenged to cut back and prioritize finances even beyond what we expected. I know everything we are experiencing now will make us wiser in the future.
Today I am going to try out a new gadget I purchased. It is a Clover Fabric Folding Pen. I will put liquid starch in it, not its original intended use, to do my freezer paper applique prep. This idea came from Joanna Figueroa, in my Fresh Figs newsletter. I will let you know what I think. I purchased mine at Joanne's Fabric with a 50% coupon. It was $12.95 so yeah that was nice.
We are looking forward to a fun weekend with Ty visiting. Joe and Ty go next door to the B&B and challenge the innkeeper to Frisbee Golf. They have a great course and the competition is tense.
Happy Birthday Chris, Have a wonderful day Saturday!.
Saturday, March 21, 2009
- Occulta. In this mildest form, there are usually no symptoms. Affected individuals have a small defect or gap in one or more of the vertebrae of the spine. A few have a dimple, hairy patch, dark spot or selling over the affected area. The spinal cord and nerves usually are normal, and most affected individuals need no treatment.
- Meningocele. In this rarest form, a cyst or fluid-filled sac pokes through the open part of the spine. The sac contains the membranes that protect the spinal cord, but not the spinal nerves. The cyst is removed by surgery, usually allowing for normal development.
- Myelomeningocele. In this most severe form, the cyst holds both the membranes and nerve roots of the spinal cord and, often, the cord itself. Or there may be no cyst, but only a fully exposed section of the spinal cord and nerves. Affected babies are at high risk of infection until the back is closed surgically, although antibiotic treatment may offer temporary protection. Inspite of surgery, affected babies have some degree of leg paralysis and bladder and bowel control problems. In general, the higher the cyst on the back, the more severe the paralysis.
Ethan was in a sack to keep the affected area moist until his surgery. Ethan's cyst was low on his back making the best of a worst case scenario.A baby with myelomeningocele usually requires surgery within 24 to 48 hours after birth. Doctors surgically tuck exposed nerves and spinal cord back inside the spinal canal and cover them with muscle and skin. Prompt surgery helps prevent additional nerve damage. However, nerve damage that already has occurred cannot be reversed. As soon after surgery as possible, a physical therapist teaches parents how to exercise their baby's legs and feet to prepare for walking with leg braces and crutches.
- Hydrocephalus. About 70 to 90 percent of children with myelomeningocele develop hydrocephalus. When cerebrospinal fluid, which cushions and protects the brain and spinal cord, is unable to circulate normally, fluid collects in and around the brain, causing the head to be enlarged. Without treatment, hydrocephalus can result in brain damage and mental retardation. Doctors usually treat hydrocephalus by surgically inserting a tube called a shunt that drains the excess fluid. The shunt runs under the skin into the chest or abdomen, and the fluid passes harmlessly into the child's body. With treatment, children with spina bifida usually can become active individuals. Most live normal or near-normal life spans.
- Prevention: A B-vitamin called Folic acid can help prevent spina bifida and other NTD's. The key is having enough folic acid in the system before pregnancy and during the early weeks of pregnancy, before the nerual tube closes.
- My information shared is from the March of Dimes website: http://www.marchofdimes.com/
When Ethan came home from the hospital, at the same time as his brothers, he was in leg casts. He had club feet, which is common with spina bifida, and in this case a part of the condition. After 6 weeks the casts were removed to let muscle development happen and let the legs grow and straighten. Treatment would take place surgically at a later date.
In late September Ethan was experiencing hydrocephalus to a degree that it became necessary for a shunt to be inserted. This gave Ethan immediate relief from the pressure.
I love this picture, babies have a mind of there own and Ethan does too. You can see his shunt just under the scalp.
Ethan is so amazing, he is a people person. He prefers people to objects and from his earliest days this really showed. Even before the shunt was in place and it was difficult for him to look up from the pressure. Right before the Christening in October, Ethan had his shunt installed. Less than a week later you can see him look easily at his God-mother. God has blessed us with Ethan and Ethan is blessed with many loving and caring people in his life. It is a very emotional to have a child born with a birth defect. From the moment you know your life is changed. You are dealing with something completely out of your control. It is events like these that really challenge your faith into action. Looking back you know what a blessing it is. Our strength comes from God, He provides the strength and courage to face all challenges. And brings wonderful people along side you for support.
Sunday, March 15, 2009
Doily decoration on top with buttons, sad, my attempt at embellishing is blushing....
I found some interesting things in those pockets........ Did you ever use curly roving from All Cooped Up, you unbraid it and it makes a wonderful santa beard, or hair. There were some little thimble buttons and an antique singer sewing machine ornament. I have no idea what I was going to use them for, I wonder if they were for this box or just for someday?
This zipper pouch is so old it is dry and brittle. Inside I found my very original Bi-Mart card...lol...... a piece of beeswax for my handquilting. A needle case I made, a bonnet with homespun bill. The hat holds a thimble and thread, very cute. But see the little tag... A closer look, That little tag was the label for a quilters dream craft show. College Hill Quiltworks. Judy transformed her charming home four times a year, into vintage quilt shopping extravaganza. Antique quilts, pillows, pictures, animals, ornaments all made from quilts. Floral arrangements, sprays and wreaths. Stitcheries.... well I have never been to another event as wonderful as Judy's. I do have a few wonderful items that I protect dearly from my GWP's, they can destuff anything faster than you can blink, my ceilings and furniture are not high enough for them to be safe.
And inside, man oh man....... little sample bags of fiberfill, from where tho...... lots of roving, cording leftover from the box making days. I remember a local gal coming in and selling wool in bags. More perfect beards or just for collecting in a box like this. A bag of triangles, hmm... what were they for.
Peeking inside the box I see rulers, very cute heart mini quilt hangers, and a creel? OK!
And a whole array of small quilting stencils, OK....I knew I had these somewhere..... I love buying stencils and knew there were some somewhere..... Oh I really liked the sunflower stencil, I bought it twice....Gee like that never happened before.....
AHA........Now I new I was not going crazy..... I have been looking for the small rotary cutter that I knew I had purchased. It was along time ago and I just knew I remembered buying one.....see there proof.... But where the H.....is it!
Friday, March 13, 2009
We are having some fairer weather this week, my son is coming over to help with a pathway in my garden. Moles were very destructive to it and my plants last fall so we are under construction. Its the only construction project in Central Oregon that I know of actually. LOL...well lets not talk economy! LOl.......
Wednesday, March 4, 2009
What a blast, Ty played lead guitar, a Nirvana song, Man Who Sold the World. He was soooo nervous, man oh man..... I'm just saying...white lips... in these times you want to say just the right thing to help them relax and enjoy the moment. I know nothing said will change things, only the experience gained will help this feeling. I believe Ty enjoyed it very much...he had such a relaxed cute smile after it was all over.
It was such an experience to see Ty playing along with a complete band. When he was finished other students and his instructor, who played along with him, were so encouraging. It was good to see, Joe and I were so appreciative that we could be there and share it with Ty.
I was impressed with the goodwill from his fellow students, one was a young man, our age, lol.....who performed on the drums the same song Ty performed.
We went to Cold Stone Ice Cream afterwards and celebrated a very fun time.
Now on to my youngest grandsons, the three amigos in Omaha.......... Boy oh Boy their smiles are just what the doctor would order for me anyday. Hayden, who is just the cutest package on earth......has the longest eyelashes, both mom and dad have long eyelashes.....
Ethan can take center of attention with his character and funny personality. He just cracks me up, I could share more pictures of this expression, maybe a video would be good. I especially love his shirt. Joe's Delivery Co. that's grandpas name and that is his job......
Jaxon loves his new play ride... its not a bouncy ride like his other playset but this expression is one of my favorites. See......I have said this before....I want to know what he is thinkin..... I know its all good..... I sewed up a little table runner from JLW, these three blocks are from Jo Morton's Prairie Flower. Working with wool is always enjoyable for me, I wasn't sure about the sashing border fabric at first, but after getting it together I liked it.
I have been sewing on my many BOM projects, they are keeping me well entertained this winter, I am ready to get outside and enjoy some gardening........ but not just yet.....we are still having snow flurries and it is cold. So sewing it is and I have enough to keep me busy.
I am working on prepping my Birds of a Feather using the starch method. I think it will take me a week to get it prepped......LOL....I am a slowpoke when learning a new technique. I will show it when its finished.
Best wishes to all of you...